Help Loren & Justin Get Urgent Medical Care

Campaign URL or Website URL : https://gofund.me/00645200

I am currently bedridden with a broken hip. I can’t work. I was diagnosed with Ehlers Danlos Syndrome. Ehlers Danlos Syndrome (EDS) is a group of inherited disorders that affect the connective tissues and collagen in the body — primarily the skin, joints, and blood vessel walls. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin.
A more severe form of the disorder, called vascular Ehlers-Danlos syndrome, can cause the walls of the blood vessels, intestines or uterus to rupture. It can also cause bones to be more brittle and fracture easily.
I have Chiari Malformation. Chiari malformations are structural defects in the base of the skull and cerebellum, the part of the brain that controls balance. Normally the cerebellum and parts of the brain stem sit above an opening in the skull that allows the spinal cord to pass through it (called the foramen magnum). When part of the cerebellum extends below the foramen magnum and into the upper spinal canal, it is called a Chiari malformation (CM).
Chiari malformations may develop when part of the skull is smaller than normal or misshapen, which forces the cerebellum to be pushed down into the foramen magnum and spinal canal. This causes pressure on the cerebellum and brain stem that may affect functions controlled by these areas and block the flow of cerebrospinal fluid (CSF)—the clear liquid that surrounds and cushions the brain and spinal cord. The CSF also circulates nutrients and chemicals filtered from the blood and removes waste products from the brain.These conditions affect the quality of my life severely. I live with Chronic Pain and Debilitating Fatigue and struggle to function. I need a brain surgery called brain decompression to help me. My fiance has Chronic Kidney Disease and Chronic Kidney Stones. In October he lost one of his kidneys. He has a massive blood clot in his leg and tbe medication he needs is $600/month. And just recently he and his mother were involved in a car accident and their only car was totaled. His mom was severely injured. We are at rock bottom financially and mentally. We ate both struggling with severe depression and anxiety and can’t figure a way out. Please help. If you cant donate please share.

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