This is my fiancé. We met in High School back in 2002, but it wasn’t till last year that we fell in love. I wouldn’t change him for anyone in the world. Ever since he was a toddler he has had trouble with his eyesight, but it wasn’t till he was 17 when he got diagnosed with Retinitis Pigmentosa also known as RP. RP is a rare, genetic disorder that involves a breakdown and loss of cells in the retina, which is the light sensitive tissue that lines the back of the eye. Meaning, he’s going blind. Although not every RP is the same, his is different and rare from other RP patients. He is loosing his eyesight from the inside out which doesn’t let him see anything that’s in front of him. He can only see a little of what may be next to him and maybe recognize it if he focuses on it. Whatever else he recognizes instantly is because he’s seen it before. He’s already night blind, which we need to be at a very lighted place for him to see and he can’t go in the sun cause it affects his eyes, even if he’s wearing sunglasses. There is no cure for RP, but doctors are working on treatments like Stem-cell-derived treatment to stop the loss of eyesight and maybe reverse it a little. He is a candidate for these treatments, but they cost a lot of money that we don’t have. During this treatment that he’d be receiving, we have to fly from Puerto Rico where we’re currently living, to New Jersey, stay at an Air BnB, food and transportation expenses included which we can’t afford. I’m not the type of person to be asking for money, but he’s worth it. I am an epilepsy patient myself and am also candidate for an operation that could end it, but he needs this more than I do. I would live the rest of my life with epilepsy just so he could get his eyesight back. I want him to have a normal life. Sometimes it goes through my mind, if we have children, will he be able to see them at all? He acts all tough cause he doesn’t want me to worry about him. He hides it behind his beautiful smile, but inside I know he’s miserable. I can see it in his eyes when he holds my head for a while just to look at my face as if it’s the last time he will be able to see it. I don’t know if you can imagine how we feel, but I know that you can help us. Help him. The first time he told me about it my eyes watered up and I started crying and we weren’t a couple yet. So you can imagine what type of person he is to make someone cry because of his illness. It’s soo sad, he’s still young. He wanted to be a child phycologist cause he likes to help people, children in this matter, but he can’t now, it’s too late, he lost the middle sight of his vision so he can’t read as he needs to and he couldn’t be able to study. It’s not too late to help him though. It’s an urgent matter cause every year he notices that he sees lesser than before. Every little bit counts and I promise that whatever is left of these donations I will donate them to others on this website who need it as much as he does.
Thank you soo much for at the very least taking your time to read his story. It means a lot to me. Please share so others can read it too and might be able to donate. Every little bit counts. God bless everyone!